Conference
on Disclosure Limitation Approaches and Data Access
Convened by the
National Research Council and The Social Science Research
Council Panel on Confidentiality and Data Access. March 1991.
Commissioned papers available in a special issue of the Journal
of Official Statistics, 1993.
Confidentiality,
Disclosure and Data Access Conference
Convened by the
U.S. Census Bureau, U.S. Bureau of Labor Statistics, American
Statistical Association (ASA) Committee on Privacy and Confidentiality,
Federal Committee on Statistical Methodology, Government Statistics
Section of the ASA, Washington Statistical Society, and the
Council of Professional Associations on Federal Statistics.
January 7-9, 2002 at the Bureau of Labor Statistics in Washington,
DC.
Goal: To highlight
the progress that statistical agencies are making in addressing
the challenges of protecting confidentiality (avoiding disclosure),
but maximizing access, from both a theoretical and practical
standpoint. To review and discuss the new state-of-the-art
techniques described by the authors of a new book: Confidentiality,
Disclosure, and Data Access: Theory and Practical Applications
for Statistical Agencies, edited by P. Doyle, J. Lane, J.
Theeuwes, and L. Zayatz and published in 2002.
NASA Confidentiality
& Geospatial Data Workshop
http://alpha.sedac.ciesin.columbia.edu/confidentiality/nasacon.html
Organized by the
Socioeconomic Data and Applications Center (SEDAC). Hosted
at the National Academies of Science Keck Center, Washington
DC, 16 July 2003.
NSF Confidentiality
Workshop 2003
http://www.nsf.gov/sbe/ses/mms/nsfworkshop_summary1.pdf
.
Convened by the
National Science Foundation and organized by the Urban Institute.
May 12-13, 2003.
Goal: Bring together a small group
of 25 researchers to jointly flesh out the basic research
agenda for an identified set of broad-ranging confidentiality
issues covering a variety of disciplines.
Sessions:
Rethinking the Conceptual
Framework
New Technological
Approaches
Understanding the
Data Dissemination Context
Confidentiality
Issues with GeoSpatial Data
The Longitudinal Retirement History
Workshop
http://books.nap.edu/openbook/0309047439/html/245.html
Convened by the
Committee on National Statistics and the Social Science Research
Council at the request of the National Institute on Aging
(NIA) and the Census
Bureau. September
18-19, 1987.
Goals: Include understanding
the problems and issues in protecting confidential data, disclosure
limitation practices, methods to access confidential data
for research.
Chair: Jerry A.
Hausman
Workshop on Confidentiality of
and Access to Doctorate Records
Convened by the
Committee on National Statistics (CNSTAT) and the Social Science
Research Council (SSRC) November 4-5, 1988.
Purpose: To determine
if and how mechanisms for allowing greater researcher access
to data from the Doctorate Records File and the Survey of
Doctorate Records could be developed without compromising
the confidentiality of the data. To identify issues for the
Panel on Confidentiality and Data Access to address.
Chair: George T.
Duncan
Workshop on Confidentiality
of and Access to National Center for Education Statistics
Data
Convened by the
Panel on Confidentiality and Data Access, Committee on National
Statistics (CNSTAT) of the National Academy of Sciences-National
Research Council and the Social Science Research Council (SSRC).
January 1991.
Purpose: To investigate
confidentiality and access issues as they apply to the National
Center for Education Statistics (NCES) and to obtain information
for the Panel’s deliberations.
Chair: William M.
Mason
Workshop on Confidentiality Issues in Linking Geographically Explicit and Self-Identifying Data
http://www8.nationalacademies.org/cp/meetingview.aspx?MeetingID=586&MeetingNo=1
Convened by the Division on Behavioral and Social Sciences and Education of the National Research Council on December 9-10, 2005, at the National Academy of Sciences in Washington, DC.
Purpose: To identify issues of linked social science data and geospatial applications in which federal or institutional rules of confidentiality or human subjects protection apply and to identify potential threats of information disclosure and threats to confidentiality from access to these data.
Panel Chair: Myron P. Gutmann
Workshop on Confidentiality
of and Access to Data Research Files http://www7.nationalacademies.org/cnstat/Workshop_Confidentiality.html
Convened by The Committee on National
Statistics (CNSTAT), Division of Behavioral and Social Sciences
and Education within The National Academies, and in consultation
with the Institute of Medicine (IOM). October 14-15, 1999.
Participants: Data producers from
Federal agencies and research organizations; Data users, including
academic researchers; and Experts in statistical disclosure
limitation techniques, confidentiality policies, and administrative
and legal procedures.
Chair: Norman Bradburn,
National Opinion Research Center
Goals accomplished:
Reviewed current practices and concerns of Federal agencies
and other data producing organizations;
Reviewed the types
of research that are enhanced, or only made possible, using
linked longitudinal data;
Provided an overview
of administrative arrangements to preserve confidentiality;
Identified ways
to foster data accessibility in secondary analysis; and
Assessed the utility
of statistical methods for limiting disclosure risk.
Workshop on Data
Access and Confidentiality—Access to Research Data:
Assessing Risks and Opportunities http://www7.nationalacademies.org/cnstat/Data_Access_Panel.html
Convened by the
Committee on National Statistics (CNSTAT), Division of Behavioral
and Social Sciences and Education within The National Academies.
October 16-17, 2003.
Chair: Eleanor Singer
Sessions:
I. Data Access and Confidentiality—the Changing Legal
Landscape
II. Facilitating
Data Access
III. Measuring the
Risks and Costs of Disclosure: to the Data Enterprise, to
Individuals
IV. The Impact of
Multiple Imputation on Disclosure Risk and Informational Utility
V. Assessing the
Benefits of Researcher Access to Longitudinal Microdata
VI. Assessing Research
and Policy Needs and Confidentiality Concerns: The Economics
of Data Access
Papers and Presentations:
Available on website under Publications http://www7.nationalacademies.org/cnstat/Data_Access_Panel.html
Workshop on Improving
Access to and Confidentiality of Research Data http://books.nap.edu/catalog/9958.html
Convened by the
Committee on National Statistics (CNSTAT), Division of Behavioral
and Social Sciences and Education within The National Academies
in consultation with the Institute of Medicine.
October 1999.
Purpose: To identify
ways of advancing the often conflicting goals of exploiting
the research potential of microdata and preserving confidentiality,
with an emphasis on longitudinal data that are linked to administrative
records.
Chair: Norman Bradburn,
National Opinion Research Center
Report: Improving Access to and Confidentiality
of Research Data: Report of a Workshop (NRC, 2000).
Privacy and Confidentiality
& Conflicts of Interest: Keeping Pace with Research Practices
Convened by Columbia University Center
for Bioethics and sponsored by NIH with the Mailman School
of Public Health and the Columbia School of Nursing.
May 30, 2003.
Participants: More than 150 investigators,
IRB members, research administrator, and others.
Goal: To share latest
developments and critical information that affects current
practices in research regarding privacy and confidentiality
and conflicts of interest. |
