NASA Public
Health Application Program
CONFIDENTIALITY
& GEOSPATIAL DATA WORKSHOP
16
July 2003
National Academy of Sciences
500 Fifth Street, NW , Room 201
Washington
DC 20001
| Agenda
| 9:30 –
10:10 |
Welcome
and Participant Introductions
Dr.
Roberta Balstad Miller, Director, CIESIN, Columbia University
Dr.
Robert A. Venezia, Program Manager for Public Health Applications,
NASA |
| 10:10 – 10:30
|
Overview
of Issues
Dr. Deborah
Balk, Lead SEDAC Project Scientist, CIESIN, Columbia University
|
| 10:30 – 10:45
|
Break |
| 10:45
– 12:30 |
Confidentiality
Issues When Using Geospatial Data for Public Health Applications,
Moderator,
Dr. Roberta Balstad Miller, CIESIN
The
Agency Perspective, Dr. Thomas Baerwald, Senior Science
Advisor, Division of Behavioral and Cognitive Sciences,
National Science Foundation
The
Researcher Perspective, Dr. Ronald Rindfuss, Faculty
Fellow, Carolina Population Center, University of North
Carolina at Chapel Hill.
The
Legal Perspective, Prof. Joanne Gabrynowicz, Director,
University of Mississippi National Remote Sensing and
Space Law Center
The
Ethical Perspective, Dr. Peter Madsen, Director, Center
for Advancement of Applied Ethics, Carnegie Mellon University
The
Commercial Perspective, Mr. Jerry Garegnani, Staff
Officer, ESRI, Inc. |
| 12:30 – 1:30
|
Lunch:
Available
in Cafeteria on 3 rd Floor (one flight up) |
| 1:30
– 3:00 |
Government
Agency Panel Discussion,
Moderator, Dr. Robert Venezia, NASA
Questions to
be addressed:
1) When have problems
related to confidentiality arisen?
2) How have you or your agency overcome these problems?
3) What barriers remain?
4) What would be your agency requirements if sharing data
with other agencies?
5) Does your agency have different requirements when funding
projects vs. sharing data?
Panel
Members:
1)
Dr. Stephen Guptill, Senior Research Physical Scientist,
U. S. Geological Survey
2)
Dr. C. Virginia Lee, Medical Officer, OAA, Agency for
Toxic Substances and Disease Registries (ATSDR), CDC
3)
Mr. Mario Merlino, Director, Office of Policy and Planning,
Division of Financial and Strategic Management, New York
City Department of Health
4)
Mr. Philip M. Steel, Disclosure Avoidance Staff, Statistical
Research Division, US Census Bureau
5)
Dr. Alvan Zarate, Confidentiality Officer, National Center
for Health Statistics (NCHS), CDC
6) Dr. Rebecca Clark, Health
Scientist Administrator, Demographic and Behavioral Sciences
Branch, National Institute of Child Health and Development
(NICHD) |
| 3:15 – 3:30
|
Break
|
| 3:30 – 4:45
|
Researcher
Panel Discussion,
Moderator, Dr. Charles Croner, NCHS
Questions
to be addressed:
1)
What key questions can be answered with the integration
of RS and socioeconomic data?
2)
How does the use of RS data potentially compromise the
confidentiality of demographic, socioeconomic, and health
data or related research results?
3)
What approaches have succeeded or failed to preserve confidentiality
in order to make data accessible to researchers, policymakers,
or the public?
4)
In what form or with what restrictions do you or your
institution release data?
5)
Do you or your institution have a data preservation plan?
Panel
Members:
1)
Ms. Livia Montana , GIS Specialist, Demographic and Health
Surveys, ORC Macro
2)
Dr. Gregory Gurri Glass, Professor, Molecular Microbiology
and Immunology, Johns Hopkins Bloomberg School of Public
Health
3)
Dr. Myron Gutmann, Director, Inter-university Consortium
for Political and Social Research (ICSPR)
4) Dr. Charles Taylor, Professor,
Department of Organismic Biology, Ecology, and Evolution,
UCLA |
| 4:45 – 5:30
|
Next
Steps,
Moderator, Dr. Deborah Balk, CIESIN |
|
|
